Founded in 2010, the National Association of Pediatric Nurse Practitioners’ Children and Youth with Special Health Care Needs Special Interest Group (CYSHCN SIG) was established for nurse practitioners to provide leadership and support in comprehensive, effective pediatric health care delivery models of care. The CYSHCN SIG promotes a comprehensive approach to child health that acknowledges the importance of coordinating a child/youths’ physical, mental, social emotional, dental, vision, developmental, educational and community health needs.
Email:Â pedhealthcarehome@napnap.org
- Continue to identify NAPNAP members interested in the implementation of innovative pediatric health care delivery models for CYSHCN.
- Demonstrate to our members the value of SIG membership and recognize members for their contributions to the SIG.
- Highlight best practices at the SIG showcase. Ex: posters, new and emerging research.)
- Encourage participation in discussion board and quarterly virtual meetings on topics related to care of CYSHCN.
- Encourage scholarly activity related to best practices and care of CYSHCN.
- Provide tools and information to be used in the clinical setting by providers who care for CYSHCN. Plan to print reference sheet and provide at NAPNAP national conference 2022.
- Donate to a special needs camp/organization.
- Please visit the Journal of Pediatric Health Care to search for articles on this topic.
- Resources are also available on the SIG’s microsite.
- Read our position statement on Children and Youth with Special Health Care Needs: Key Issues on Care Coordination, Transitions and Leadership.
- Gastronomy Tube Fact Sheet – this one page handout, created in collaboration with the Pediatric General Surgery SIG, provides patient families with necessary information about a gastronomy tube, including how to clean it and what to do if the tube comes out.
- Checklist for Primary Care Providers of Children with Cerebral Palsy is a quick reference guide for providers.
- Children and Youth with Special Health Care Needs (CYSHCN) SIG Award for Excellence in Doctoral Projects provides an annual monetary award of $250 to a selected recent graduate (within one year) of an accredited doctoral program whose scholarly project best exemplifies the current goals of our SIG. A second award will be made if the SIG budget has sufficient funds.
- American Academy of Nurse Practitioners’ (AANP) The Medical Home: What Is It? How Do Nurse Practitioners Fit In?Â
- Investing in Maternal and Child Health: An Employer’s Toolkit – This toolkit is the culmination of a partnership between the Center for Prevention and Health Services at the National Business Group on Health and the Maternal and Child Health Bureau within the Health Resources and Services Administration.
-  AHRQ Patient Centered Medical Home Website – The Agency for Healthcare Research and Quality recognizes that revitalizing the nation’s primary care system is foundational to achieving high-quality, accessible and efficient health care for all Americans. The primary care medical home, also referred to as the patient centered medical home (PCMH), advanced primary care and the healthcare home, is a promising model for transforming the organization and delivery of primary care.
- American Academy of Pediatrics (AAP)Â National Center of Medical Home ImplementationÂ
- Medical Home Plus –Â Resources, Outreach and Community Based Support
- Achieving a Shared Plan of Care with Children and Youth with Special Health Care Needs
- Medical Home Model – a new online professional development course developed at the University of Colorado, College of Nursing and the Colorado Department of Public Health and Environment is available by clicking here and approved for Nursing Contact Hour Credit through the UC College of Nursing.
- Nursing Care Coordination – a new online professional development course developed at the University of Colorado, College of Nursing and the Colorado Department of Public Health and Environment also available by clicking here.
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