Patient Information/Education This page contains a variety of patient information for children and families. NAPNAP hopes that pediatric nurse practitioners (PNPs) will share these resources with thier patients and that any parents or caregivers visiting this site will find the information helpful as well. The site includes a list of various NAPNAP Parent Handouts on topics such as Pediatric Immunizations, Nutrition and Feeding, Flu, and Pediatric Health Care/Medical Home. Also listed are Websites for Parents and Caregivers which provide useful information on topics such as Coping with Disasters and Traumatic Events, Vesicouretural Reflux (VUR), Peditaric Tracheostomy Care, Keeping Track of Medications, and many more. NAPNAP is pleased to share with you a downloadable verison of the brochure Vaccinations: Keeping Children Healthy for a Lifetime! This brochure was made possible through an unrestricted educational grant from Wyeth Pharmaceuticals and addresses all the recommended vaccines recommended for children of all ages. Click here to download and print a copy of the brochure in English or click here for the Spanish version.  Archived Webinar Available for Download! NAPNAP's Meeting the Immunization Needs of Infants and Toddlers in Foster Care: A Webinar for Foster Parents (originally presented by NAPNAP on September 29, 2009) can now be downloaded and viewed at your convenience. Attention Foster Parents! After viewing the webinar, click here to complete an evaluation and provide information to receive a Certificate of Completion.
Please find handouts below for parents and families from NAPNAP and the NAPNAP Foundation's Healthy Eating and Activity Together (HEAT) Program. Most of them are available in both English and Spanish. HEAT: Infancy Parent Tips
HEAT: Consejos para padres de infantes HEAT: Early Childhood Parent Tips
HEAT: Consejos para padres con niños de primera infancia HEAT: School Age Parent Tips
HEAT: Consejos para padres de niños con edad escolar HEAT: Teen Tips
HEAT: Consejos para adolescentes Why Breastfeed? (From HEAT Resource Kit) Guide to Common Breastfeeding Problems (From HEAT Resource Kit) Successfull Bottlefeeding
Como Dar el Biberón
Cuanta Formula Necesita mi Bebe? Building Blocks to Helping Toddlers Eat Well
Pasos Basicos para Ayudar a Los Chiquillos a Comer Bien
The Scoop on Babies' Poop
Sobre el Excremento (la Pop?) de su Bebe
Spanish Language Parenting Guide: Que Significa ser Padres? Flu information for children, parents and child care providers from the CDC The Flu: A Guide for Parents: Questions and answers about the flu, how to protect your child, treatment and more. Stopping Germs at Home, Work and School: Fact sheet.
Ounce of Prevention: Tips and streaming video for parents and children about the steps and benefits of effective hand washing.
CDC Free Flu Materials: This year's seasonal flu materials are free for download—no printed versions are available. They may be printed on a standard office printer, or you may use a commercial printer. Emphasis remains on outreach to high-risk groups, as well as parents of all children, healthcare workers and people in the workplace.
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Pediatric Health Care/Medical Home Click here to download this easy to read handout which is an excellent introduction for parents and children to the pediatric health care/medical home. The Teen Survival Guide: Health Tips for On-go Girls is a 78-page, pocket-sized publication for girls. Created by the Department of Health and Human Services, the Guide is available for free on their Web site at http://www.girlshealth.gov/freestuff/teenguide/. It teaches girls about their health through activities, fun quizzes, glossaries of new words, and questions from young women. The Guide answers teens’ questions, including, “Does chocolate cause pimples?” and “Can I get a sexually transmitted disease from kissing?” An online version of the Guide is available at http://www.girlshealth.gov/teenguide/index.cfm. Or, to order a free copy, call 1-800-994-9662.
The following are links to websites with patient information. -
Resources for Families Coping with Disasters and Traumatic Events Natural disasters, such as hurricanes and fires and traumatic events, such as acts of terrorism, violence, and war can be frightening for adults, but they are especially traumatic for children. Being prepared for natural disasters and knowing how to handle the aftermath of disasters and stressful events is essential. Click here to find available resources to aid health care professionals, parents, teachers, and children with preparing for disasters. The National Association of Pediatric Nurse Practitioners (NAPNAP) has partnered with Q-Med Scandinavia, Inc. to develop a new online resource dedicated to educating parents and providing them with necessary information and resources about the different treatment options available to manage vesicoureteral reflux (VUR). VUR is a condition affecting young children that allows urine to flow backwards from the bladder to the kidneys through one or both of the connecting ureters. Children with VUR lack the valve function that prevents this reflux. For many parents whose children have VUR, the condition and treatment options can be overwhelming and confusing. Be sure to check out www.vurinfo.com! -
Autism Website: Healing Thresholds Healing Thresholds is a free website and email newsletter dedicated to healing the lives of families touched by autism. They provide comprehensive therapy fact sheets, daily updates of autism therapy research and news, and a global directory of autism-related therapists and services. Go to http://autism.healingthresholds.com to learn more. The Agency for Healthcare Research and Quality (AHRQ) has released new public service advertisements designed to encourage consumers to get involved in their health care by knowing and asking appropriate questions when visiting their healthcare provider. Visit http://www.ahrq.gov/questionsaretheanswer to learn the 10 questions every patient should think about asking when visiting their healthcare provider. -
Have You Heard?: A Pre-teen Meningitis Vaccine Video This parent-friendly short video from the CDC Childhood Immunization Communication uses a real-life mother and daughter team to showcase the all-too-real experience of when meningococcal illness frightens a community. Using a mix of humor and concrete advice from a CDC pediatric expert, this video will strike a chord with parents everywhere, encouraging pre-teen vaccination and a well-child visit for the often over-looked school-age child. Visit http://www.cdc.gov/cdctv/haveyouheard/ to watch or download for free. - Online Video: "Breath of Life: A Caregiver's Guide to Pediatric Tracheostomy Care"
Creative Force Video Productions has announced the release of a new half-hour video, "Breath of Life: A Caregiver's Guide to Pediatric Tracheostomy Care." The video is a free resource for families in need, developed by parents Matt and Melanie Dragovits, along with their daughter Elizabeth, who walk viewers through each of the steps in their daily pediatric tracheostomy home care. The full program can be viewed for free online, as streaming video, and may also be ordered on DVD. To view the video online and get more information, go to http://www.patienteducation.tv/trach_video.php. Creative Force Video Productions has announced the release of a new half-hour video, "Breath of Life: A Caregiver's Guide to Pediatric Tracheostomy Care." The video is a free resource for families in need, developed by parents Matt and Melanie Dragovits, along with their daughter Elizabeth, who walk viewers through each of the steps in their daily pediatric tracheostomy home care. The full program can be viewed for free online, as streaming video, and may also be ordered on DVD. To view the video online and get more information, go to . The contents are for informational purposes only and should never replace the advice and care of a licensed healthcare professional. NAPNAP does not guarantee the accuracy, completeness or timeliness of any information contained in this video, and shall not be liable for any loss, damage or injury directly or indirectly cased by or resulting from such information or its use. NAPNAP's link to this video shall not in any manner be interpreted to constitute an endorsement by NAPNAP of any products or services that may be advertised or referenced therein. -
Keeping Track of Your Medications - New Medicine Record from the FDA The U.S. Food and Drug Administration (FDA) has a new record to help you keep track of the medicines and dietary supplements (including vitamins and herbals) you use. Keep “My Medicine Record” with you all the time and show it to all your health care professionals every time you visit a physician office, pharmacy, health center, and hospital. That way, all the people who take care of you can see everything you are using, check for combinations that could be harmful, make suggestions, and keep their records on you up-to-date. Print the record from a computer and enter the information with a pencil. Or use a computer to save the record, enter your information, save again, and print. Next time, you only have to enter anything that has changed, save and print. There are directions on how to use the record and a question guide to help you ask for information about your medicines. “My Medicine Record” – http://www.fda.gov/cder/consumerinfo/my_medicine_record.htm
National Alopecia Areata Foundation www.naaf.org National Eczema Association for Science & Education www.nationaleczema.org U.S. Consumer Product Safety Commission www.cpsc.gov Thimerosal in Vaccines www.vaccineinformation.org/thimerosal Vaccines and Autism www.vaccineinformation.org/autism
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